Dementia is a condition that has an impact extending beyond the individual. It also impacts family and friends who more often than not have to take on some kind of support role for the individual. Often those that are required to provide care and support can be more greatly impacted than the individual themselves.
I’m sure many will empathise with others experiencing worry, frustration, upset and emotional pain as they are not only stressed due to the development of a condition, but also due to the now increased responsibility placed upon them. It can be a thankless role and in some cases a lonely one too.
Unfortunately when going through such a situation no amount of online articles, family conversations and medical advice will ease the emotional burden that may be placed upon some individuals. However often speaking to someone who truly understands, and who is going through the same thing will be able to provide solution to problems and support throughout.
Talking Point is Alzheimer’s Soceity’s support and discussion forum. Downloadable on tablet, smart phone and accessible on the internet it’s a place to share advice, support and chat to those who can empathise. It’s a simple intuitive way to speak to individuals who will not judge or criticise.
Too often the collateral impact of a long term condition is forgotten, often it is the friends and family that require the most support. I strongly recommend anybody who may be experiencing the impact of a diagnosis or dementia to have a look at the forums, even if you don’t want to take part in the discussion the information may be extremely useful.
Jack Barton (Researcher, Rescon Ltd)